What is the Child Health Data Inventory?
The Child Health Data Inventory is a comprehensive inventory of over 100 Canadian datasets that can be used to search for specific intersections of child/family health and equity variables based on our Conceptual Framework for Child Flourishing in Canada. Through this tool, we strive to promote and facilitate access to existing datasets relevant to child health equity research.
For any other inquiries, or suggestions on how we can improve our Data Inventory, please send an email to leong.centre@sickkids.ca.
What is Included in the Data Inventory?
Description. Provides a summary of the scope of the dataset and what type of information is available.
Flourishing Indicators. Measures of child and family flourishing included in the Leong Centre's adapted Conceptual Framework for Child Flourishing in Canada. These include: Adolescent Suicide, Life Satisfaction, Access to Maternal & Child Mental Health Services, Protection from Violence, Early Child Development & School Readiness, Access to Maternal & Child Health Services, Child Health & Morbidity, Parental Health & Morbidity, Overweight & Obesity, Growth & Nutrition, Educational Achievement, Social Skills, Health Promoting Environment, Reproductive & Sexual Health, Lack of Poverty
Jurisdiction. Refers to the region from which the data is collected, and includes the following categories: Ontario Only, Pan-Canadian, International.
Category. Refers to the type of data categorized as follows:
- Survey Data. Survey data include data collected from a sample of respondents. Data are collected from a targeted audience about a specific topic to conduct research. Survey methods may be cross-sectional or longitudinal, and conducted through include online or paper or questionnaires, telephone surveys, or in-person interviews.
- Routinely Collected Health Data. Routinely collected health data included data collected during health system encounters, including physicians’ offices, diagnostic procedures, hospital admissions, among others. These data are collected to examine health system delivery or performance.
- Routinely Collected Social and Environmental Data. Data sources related to social services provided to families, such as housing, financial assistance, childcare, employment, as well as sources of area and community-level data such as resources, neighbourhood safety, and built environment, among others.
- Clinical Registry. Clinical disease or patient registries including records of individuals with specific conditions, diagnoses, procedures or interventions. Registries provide information on clinical practice, patient outcomes, safety and effectiveness, treatment outcomes and costs.
- Large Prospective Cohorts. Prospective cohorts include observational data on specific disease or clinical populations in real time, extracted from administrative data or electronic health record systems.
Population. The individuals and groups represented in each database, including:
- Perinatal (Maternal & Newborns). Includes data on maternal health (health status, health service use), fertility (treatment, procedures), prenatal (antenatal) care, hospital admissions (pregnancy, labour, birth) post-natal care, early newborn care and screening (age < 30 days), fetal and congenital anomalies, and neonatal outcomes.
- Children & Adolescents. Includes data related to health and social outcomes among children and adolescents aged 30 days to 19 years.
- Families. Data on family and household characteristics and outcomes (e.g. income, educational attainment, employment, family type/composition, social assistance, access to childcare).
Access. How the data can be accessed.
Link. External URL for more information on the dataset, including methodology, data definitions, variables, and related documentation.
How Can Data be Accessed?
This inventory does not provide data access. Information on how to access the specific data associated with the datasets can be found in the details of each, but in general can be accessed through the following:
- ICES data holdings: https://www.ices.on.ca/Data-and-Privacy/ICES-data/Working-with-ICES-Data
- Statistics Canada Microdata Access (information on accessing data using the Public Use Microdata File (PUMF) and Research Data Centres (RDCs): https://www.statcan.gc.ca/en/microdata
List of Datasets (A-Z)
Survey of Safety in Public and Private Spaces (SSPPS)
Description: The purpose of this survey is to collect information on Canadians' experiences related to their safety in public and private spaces. Questions are asked about these personal experiences at home, in the workplace, in public spaces and online.
Access: Statistics Canada
Survey on Early Learning and Child Care Arrangements (SELCCA)
Description: The survey addresses child care in Canada for children younger than 6 years old and collects information about the different types of early learning and child care arrangements used by families, difficulties that families may experience when looking for care, as well as reasons for not using child care.
Access: Statistics Canada
Survey on Household Spending (SHS)
Description: The SHS primarily collects detailed information on household expenditures. It also collects information about the annual income of household members (from personal income tax data), demographic characteristics of the household, dwelling characteristics (e.g., type, age and tenure) and household equipment (e.g., electronics and communications equipment).
Access: Statistics Canada
Survey on Individual Safety in the Postsecondary Student Population (SISPSP)
Description: The Survey on Individual Safety in the Postsecondary Student Population (SISPSP) is a survey sponsored by the Department for Women and Gender Equality (formerly Status of Women Canada), in response to the federal government's Strategy to Prevent and Address Gender-Based Violence. The goal of the Survey on Individual Safety in the Postsecondary Student Population is to obtain an accurate picture of the nature, extent and impact of inappropriate sexual and discriminatory behaviours that occur in a school-related setting. This survey measures the prevalence and nature of the following types of self-reported victimization among postsecondary students, including: (1) Inappropriate sexual behaviours; (2) harassment based on sex, sexual orientation, or gender identity; and (3) Sexual assault.
Access: Statistics Canada
Survey on Maternal Health
Description: The main objective of the Survey on Maternal Health is to collect information from biological mothers about their pregnancy and postpartum experiences. Results from the survey will be used by researchers and policy makers to monitor maternal health and to improve the health and wellness of women.
Access: Statistics Canada
TARGet Kids!
Description: The aim of the TARGet Kids! registry is to link early life exposures to health problems including obesity, micronutrient deficiencies, and developmental problems.
Access: ICES, TARGet Kids!
Tele-Link Mental Health Program (TLMHP)
Description: The Tele-Link Mental Health Program data contains personal health information on children and adolescent who received mental health services through Ontario’s Child and Youth Tele-Mental Health Program.
Access: ICES