Trainee Hub Special Event: Building Authentic Partnerships with Patient and Community Partners

DATE: Tuesday, January 27
TIME: 12:00 – 1:30pm (ET)
METHOD: In Person Event
REGISTRATION: https://simpli.events/e/buildingpartnerships

Click to register

We are pleased to announce that this in-person workshop is a collaboration between the Edwin S.H. Leong Centre for Healthy Children, the Office of Engagement at The Hospital for Sick Children, and The Hospital for Sick Children Research Training Centre!

SPEAKERS:

Colin Macarthur, MBChB, PhD, is a Senior Scientist at the Hospital for Sick Children Research Institute, Professor of Paediatrics at the University of Toronto, and co-lead of the Ontario Child Health SUPPORT Unit. He completed his medical training at the University of Glasgow and his PhD in Epidemiology & Biostatistics at McGill University.

Dalya Kablawi is a patient and family engagement specialist with experience in mental health and suicide prevention. She co-developed an award-winning framework at the Mental Health Commission of Canada and now coordinates research engagements at SickKids. Dalya also serves on the Board of the International Association of Public Participation (Canada).

Stephanie Lemelin Bazinet is the Manager, Research Partnerships and Engagement at the Canadian Cancer Society. With nearly two decades of experience in research, Stephanie is an expert in patient engagement and grants management.

TITLE: Building Authentic Partnerships with Patient and Community Partners: Cultivating Communities to Engage in Research

DESCRIPTION: Building and maintaining strong partnerships with community members enhances the transparency, representation, and overall impact of research. As researchers increasingly collaborate with communities to ask relevant questions and conduct equitable work, they often face challenges like tight timelines and limited funding. The panel of speakers will explore the principles of authentic partnerships, including connection and commitment, creating safe spaces, valuing diverse perspectives, and fostering open communication. They will also discuss how these partnerships function in practice and what transparency looks like in research, ensuring community partners are informed and actively engaged in the data collection process.

OBJECTIVES:

At the end of this session, you will be able to:

1. Define the key principles of co-design, including connection, commitment, and valuing diverse perspectives.
2. Describe how to ensure transparency in research processes, fostering trust and engagement among patient and community partners involved.
3. Discuss strategies for collaborating with communities, helping researchers navigate challenges like tight timelines and limited funding while conducting equitable research.